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Indo US Bridging RARE Summit 2023

Connecting the Global Rare Disease Community

In the 40 years since the Orphan Drug Act was legislated in the USA, there is a growing understanding of the importance of rare diseases that affect over 30 million Americans. While the situation in Europe is similar, no such awareness exists in many parts of the world such as India which is home to over a quarter of the world’s population. It is time to change that, for the 1.5 billion people in India, and the 8 billion people across the world.

The Bridging RARE Summit 2023 brings together key leaders representing all stakeholders of rare diseases from across the world with a specific focus on the US, and the Indian subcontinent.

Cross Border Patient Engagement

Care Pathways: Screening, Diagnosis, & Treatment options

Digitization of Rare Diseases - Registries, Emerging Markets

DEI & Globalization for Orphan Drugs

Orphan Drug Clinical Trials

Regulatory pathways for Orphan Drugs

Indo US Bridging RARE Summit 2023 is a Hybrid Event

Live and in-person at Van Metre Hall, George Mason University

Registrations Details

  • Please note that only the Indo US Bridging RARE Summit sessions can be attended virtually. The Gala and Awards Ceremony is an in person only event, and will require your presence at the venue
  • *Valid only if the ticket is purchased along with Summit registration. This rate will not be applicable if tickets are purchased separately at any later point in time.
  • Be among the first to register to get a special discount. Use Promo code FIRST50 at payment to get 50% off on Summit Pricing.
  • Please note Discount is NOT applicable on Gala Ticket.


Van Metre Hall, George Mason University,
3351 Fairfax Dr, Arlington, VA 22201, United States

Travel Fellowships that you can apply for

*For information only.
IndoUSrare is not affiliated with and does not endorse any of these funding sources. We also do not provide any travel allowances.

RDDC Health Equity Conference Scholarship

Deadline: Aug 31, 2023 11:59 PM, EST

This scholarship supports conference participation for early-career medical and allied health professionals, and medical and allied health students seeking to expand their knowledge in the field of Rare Diseases and are committed to advancing equity, diversity, and inclusion in Rare.

Summit Price Chart

NOT FOR PUBLIC DISPLAY - to use as a guide to set up registration at Backend
Type of Registration Type of Registration Academia/non-profit/PAGs* FT Students Patients, Individuals (get correct terminology)* Speakers *Member Discounts for Corporate
& Patients Alliance
Type of Registration Industry Professional Advocate, Non Profits, Academia,
Government, Healthcare providers
Students Patients, Caregivers Speakers * Member Discounts for Corporate
& Patients Alliance
Registration - In-person 750 250 50 50 0 50%
Reg - Virtual 250 100 25 25 0 50%
IURARE Gala & Awards Ceremony (Single) 550 550 550 550 Donate 0%
IURARE Gala & Awards Ceremony (Couple) 800 800 800 800 Donate
Gala ticket (as add on with registration) 350 350 350 350 0%
Amount in USD
Please note Capacity for In Person as given below
Cap - in-person (max number of registration) 80 50 20 30 30
Discount rules
V early bird 50% off first 50 registrations from start promocode "FIRST50" Only for registration not for Gala Please suggest the End Date June 15th 2023
Early bird 25% off Till August 15th 2023- promocode "EARLYBIRD" Only for registration not for Gala Please suggest the Start Date August 15th 2023
  • First 50 registrations from start - promocode "FIRST50" - 50% off
  • Till July 31st 2023 - promocode "EARLYBIRD" - 25% off
  • Member discount - 50% with a promocode "INDOUSRARE"
Only applicable if they are using the promocode . In case of any registrions without promocode , the actual registration charges will be levied Only for registration not for Gala To be used


Interested in becoming a speaker?

Submit Speaker Abstract

*All times are based on US Eastern Time

  • Welcome Note
  • Lamp Lighting
  • Invocation: A Group of Indian American Students in the BHCR
  • Special Talks from Guests of Honor
  • Welcome to the SUMMIT and Opening Address
  • Key Note 1 US
  • Key Note 2 India
  • Panel Discussion: Patients, Advocates, PAGs

How do advocacy and engagement differ across the world? (views from patient advocates from the US, EU, and India)

TBD (US, India) Harsha Rajasimha, MS Ph.D.

Networking Break : 9:30 am to 10:00 am

What does DEI mean to us today - definitions and inadequacies, and the way ahead

  • How to engage and collaborate better?
  • DEI in the context of the Indian Community
  • SCD is not only African American
  • Hemophilia and Thalassemia - Indian Experience

Lunch : 12:00 pm to 01:00 pm

Screening, diagnosis and treatments for rare disease patients – differences across geographies (physicians in the rare disease field)


Networking Break : 2:30 pm to 03:00 pm

Current status, and strategies to increase global representation

(experts in design and development of real-world data, registries, natural history studies)


Networking Happy Hour : 4:30 pm to 06:30 pm

- Keynotes from the greats


6:30 pm onwards

Close of Day 1

Networking Breakfast : 7 am to 8 am

Recap of Day 1

Reena Kartha, Ph.D

Challenges with conducting rare disease clinical trials in areas other than the western world, emphasis on India

(views from Clin ops experienced panelists from companies in the US, EU, India)


Networking Break : 09:00 am to 10:30 am

Regulatory and policy differences in various geographies, and how we can develop a global framework to bring access to treatments everywhere

(panelists from the FDA, EU/EMA, DCGI, other regulators)

What are the pathways for rare diseases drugs in India – for approval, for reimbursement, etc

(Delegates from Indian Regulatory Agencies and Pharma companies)

Frank Sasinowski, JD, MPH

Networking Break : 09:00 am to 10:30 am

  • What are current strategies for large and small companies?
  • Why is there a lack of emphasis on geographies other than the US and western Europe?
  • What can be done to change this scenario?

(Leaders from companies - experiences from launching rare disease drugs)


Lunch : 12:00 pm to 01:00 pm

Networking Break : 02:00 pm to 03:30 pm

Volunteer Recognition Vote of Thanks

Narayanan Govindarajan, Treasurer & Board Director, IndoUSrare

3:30 pm to 4 pm

Pre-arranged Bus tours of local attractions and counties to showcase resources and capabilities in the BHCR region.

Close of Day 2

Summit Planning Committee


Amy Adams, Ph.D.

Institute for Biohealth Innovation, George Mason University


Rich Bendis

BioHealth Innovation and BioHealth Capital Region Forum


Anish Bhatnagar, MD

IndoUSrare and Soleno Therapeutics


Madhulika Kabra, MD

All India Institute of Medical Sciences (AIIMS, Delhi)


Reena Kartha, MS, Ph.D.

IndoUSrare and Center for Orphan Drug Research, UMN


Juhi Naithani, MBA

IndoUSrare and bGlobal Consulting


John Newby, JD

Virginia Bio


Harsha Rajasimha, MS, Ph.D.

IndoUSrare and Jeeva Informatics Solutions


Frank Sasinowski, MPH, JD

IndoUSrare and Hyman Phelps McNamara PC


Bhaskar Sonowal, MBBS, MBA

IndoUSrare and HED Healthcare


K Thangaraj, Ph.D.

Centre for DNA Fingerprinting and Diagnostics (CDFD)

Organizing Secretariat

Nisha Venugopal, Ph.D.


Annaliess Trommatter

Institute for Biohealth Innovation, GMU

Ramya Karur


Katie Maney

Institute for Biohealth Innovation, GMU

I am a :

Paid Delegate
Pre registered buyer of

VAC 2022

Welcome Message

The Virtual Actuarial Conclave (VAC) is an annual flagship event hosted by the Institute of Actuaries of India. It is a platform which brings renowned global speakers and eminent dignitaries from across the globle together and provides unmatched learning and networking opportunities to the members of actuarial community. It is one of the most sought-after events amongst the students, who look forward to it every year to learn from the industry leaders and trendsetters and connect with the potential employers.

VAC encapsulates a series of large expert sessions that cover a wide variety of Actuarial topics at a macro level, while diving deep into the fundamentals and on-ground challenges with smaller groups. This lends a comprehensive angle to the event, making it relevant for one and all. With a new and emerging era of digitization, VAC is an effort to continue developing the profession and encouraging valuable discussions through its platform. By embracing the digital format, this annual event that offers a sense of belonging to the entire actuarial community, has now become more accessible and global in nature.

With a new and emerging era of digitization, VAC is an effort to continue developing the profession and encouraging valuable discussions through its platform. By embracing the digital format, this annual event that offers a sense of belonging to the entire actuarial community, has now become more accessible and global in nature.

The ALUCAST Conference and Exhibition widely acclaimed by the Die Casting Industry and allied industries, is an Annual Event, organized by the Aluminium Casters’ Association (ALUCAST)®️, India. This event serves as a forum for exchange of ideas, technical know-how and brainstorming, with the participation of eminent experts in the various Die Casting arenas from India and abroad.

I am delighted to announce that the 27th edition of this annual event - ALUCAST 2021 is being organized on the 9th – 10th – 11th of December 2021 in the Virtual Mode. The Theme for ALUCAST 2021 is CURRENT TRENDS IN DIE CASTING.

The Die Casting Industry has been going through challenging times since the last financial year because of the unprecedented disruptions caused by the Covid-19 Pandemic. The fluctuating prices of Aluminium, increasing manufacturing costs, shortage of skilled manpower and the resultant pressures on cash flows has become a major concern today. These challenges would appear more for the SMEs.

ALUCAST 2021 Virtual Conference will focus on the above referred challenges faced by the Die Casting Industry and deliberate on methods to tackle these issues and revive the Die Casting Industry post pandemic and pave the path towards sustainable growth.

I have pleasure in inviting Professionals, Engineers and Academicians to present Technical Papers on the various topics identified for ALUCAST 2021 Virtual Conference.

The ALUCAST 2021 Virtual Exhibition is being concurrently organized, and shall provide the Die Casters, manufacturers and suppliers from the allied industries a platform to showcase their products and services to prospective clients and revive business opportunities.

The Event assures the best value, experience and visibility for the Sponsors, Exhibitors, Speakers, Delegates and the Visitors. I extend a Warm Invitation to all the Professionals, Engineers, Academicians and the Students of Engineering and Technology to participate in this 3-Days Virtual Conference and Exhibition.

The Advisory Committee – ALUCAST 2021 looks forward to the support of the entire Die Casting Fraternity, as in the past. I thank you for your continued support and patronage.

With best wishes




Dr. Mala Arora


Dr. Hema Shobhane


Dr. Anju Verma


Dr. Shashibala Bhonsle Sao


Dr. Preeti Gupta


Dr. Meera Bandil


Dr. Sonali Agrawal

Program Details:

1 day Programme | 20th July 2022 | Virtual

Date/Time (IST)



7:00 - 7:05 PM

Welcoming the chief guest and Introduction to PCOS

Dr. Priya Bhave Chittawar

7:05- 7:10 PM

Remarks on Program & Introduction of Chairperson

Dr. Pratishtha Dalmia

7:10-7:15 PM

Introduction to SIG PCOS

Dr. Leena Wadhwa

7:15-7:45 PM

Newer Therapies in PCOS

Dr. Brig R.K. Sharma

7:45-7:55 PM

Discussion by Chairperson

Dr. Mala Arora
Dr. Anju Verma
Dr. Hema Shobhane
Dr. Shashibala Bhonsle Sao
Dr. Preeti Gupta
Dr. Meera Bandil
Dr. Sonali Agrawal

7:55-8:00 PM

Introduction of Second Speaker

Dr. Susmita Mukherjee

8:00-8:30 PM

Ovulation Induction Protocols in different phenotypes of PCOS

Dr. Bharati Dhorepatil

8:30-8:40 PM

Discussion by Chairperson & Audience

8:40-9:00 PM

Vote of Thanks

Dr. Pratishtha Dalmia

Day 2 : 24th August 2022 Time: GMT + 5:30

Two Sides of the Same Coin: The Link Between Air Pollution and Climate Change

Date/Time (IST)



Welcome address and introduction


Session 1: Energy Fix - The Role of Low-Emission Technologies in Addressing Air Pollution & Climate Change (Panel Discussion)

Objective: Adopt clean fuel technology through sustainable approaches for a holistic reduction in emissions in developing countries

Discussion points
  • Availability of alternative low-emission technologies
  • Clean energy adaptation scenario in India
  • Role ofsector-wise energy transition in reducing emissions

Session 2: Solutions for Pollution (Student Poster Competition, Round 1)

Objective: Evaluate students' posters and shortlist five posters for the final round to be presented on Day 3 of the event


Session 3: Seeing Is Believing - Addressing the Time Lag of Climate Change Impact to Enable Policies That Work (Presentation)

Objective: Assess the effect of air pollution on regional climate, livelihood, survival, etc.

Discussion points
  • How air pollutants (aerosols) affect climate change
  • How air pollution and climate change affect peoples' livelihood at a regional scale

Session 4: The Number Game - Putting a Number on Our Losses (Panel Discussion)

Objective: Explore the economic impact of air pollution on the society, environment, and occupational health

Discussion points
  • Ways to quantify air pollution externalities
  • Economic losses due to air pollution
  • Impact of air pollution on occupational health

Session 5: Introducing Sponsors

Introduction of technologies and research outputs by sponsors


Summary of the day and concluding remarks

Day 3 : 25th August 2022 Time: GMT + 5:30

Tracking Clean Air Policies: Where Are We in the War Against Pollution?

Date/Time (IST)



Welcome note and keynote address


Session 1: Policy Manoeuvres - Way forward for NCAP (Panel Discussion)

Objective: Understand ground-level challenges faced by NCAP, identify interventions required for achieving NCAP targets, and highlight the way forward

Discussion points
  • Achievements under NCAP to date
  • Ground-level challenges
  • Support/action required from different stakeholders

Session 2: Solutions for Pollution (Student Poster Competition, Final Round)


Session 3: Better Data for Better Policies - Standardising Measurement Practices (Presentation)

Objective: Frame a uniform measurement protocol using hybrid sensors, satellite data, mobile monitoring, etc., for informed policy decisions

Discussion points
  • Challenges in measuring air pollution levels
  • Requirement of a common/standard framework for different types of measuring techniques
  • Developing a framework for reporting the findings

Session 4: Policy Integration - Leveraging Co-benefits of Policies Addressing Air Pollution and Climate (Panel Discussion)

Objective: Discuss counter-intuitive policy decisions on climate and air pollution, identify the correlation between air pollution and climate change policies, and determine sustainable approaches

Discussion points
  • Sustainable Development Goals and air pollution
  • Importance of developing common policies for air pollution and climate mitigation
  • Adverse impact of isolated policymaking on air pollution and climate change

Session 5: Introducing Sponsors

Introduction of technologies and research outputs by sponsors


Summary of the day and concluding remarks

Day 4 : 26th August 2022 Time: GMT + 5:30

Air Sensor International Conference - India Chapter

Date/Time (IST)



Opening panel: Discussion of the current situation and perspectives regarding small, affordable air quality sensors and deliberate the common future we want to establish a vision that brings all perspectives together


Session 1A: Data Modelling and Analytics

Session 1B: Choosing and Evaluating a Sensor


Session 2A: Data Assimilation, Sharing, and Visualisation

Session 2B: Network Design and Operations


Session 3: Performance Targets and Sensor Calibration


Session 4: Real-World Sensor Applications


Closing panel: How to create consensus and move forward with common standardisation goals to influence improved air quality.

**programmes are subject to change without notice.

Day – 1
Thursday 9th December 2021
9.30 am to 6.00 pm
Conference + Exhibition
Day – 2
Friday 10th December 2021
9.30 am to 6.00 pm
Conference + Exhibition
Day – 3
Saturday 11th December 2021
9.30 am to 6.00 pm
Industry 4.0
Non-automotive Applications of Die Casting
Die Casting for E Vehicles
Managing Price Fluctuation of Aluminium
Impact of Vehicle Scrappage Policy on Die Casting
Industrial Revival Post Pandemic
Cost management in Die Casting
Reducing Casting Rejection using Six Sigma Tool
Latest Developments in Die Casting Technology (Process / Machine)
9th – 10th – 11th DECEMBER 2021
(Thursday – Friday – Saturday)
Day 1
Thursday 9th December 2021
9.30 am to 6.00 pm
Conference + Exhibition
Day – 2
Friday 10th December 2021
9.30 am to 6.00 pm
Conference + Exhibition
Day – 3
Saturday 11th December 2021
9.30 am to 6.00 pm

VAC 2022

  • ALL
  • Diamond
  • Gold
  • Silver
  • Bronze
  • Green
  • Awards
  • Photo Booth
  • Resource Center

VAC 2022


Smt. Nirmala Sitharaman

Hon. Minister of Finance & Corporate Affairs
Government of india

Roseanne Harris

President, International Actuarial Association

Supratim Bandyopadhyay

Chairperson, PFRDA

Subhendu Bal

President, Institute of Actuaries of India

Jennifer Gillespie

President, Society of Actuaries

Matt Saker

President Elect, IFoA

Roosevelt Mosley

President Elect, Casualty Actuarial Society

Tjaart Esterhuyse

President, Actuarial Society of South Africa

Lusani Mulaudzi

President, FASSA

Parmod Arora

Member Actuary, IRDAI

VAC 2021

Statistics at a Glance

VAC 2021

Blast From the Past