In the 40 years since the Orphan Drug Act was legislated in the USA, there is a growing understanding of the importance of rare diseases that affect over 30 million Americans. While the situation in Europe is similar, no such awareness exists in many parts of the world such as India which is home to over a quarter of the world’s population. It is time to change that, for the 1.5 billion people in India, and the 8 billion people across the world.
The Bridging RARE Summit 2023 brings together key leaders representing all stakeholders of rare diseases from across the world with a specific focus on the US, and the Indian subcontinent.
Cross Border Patient Engagement
Care Pathways: Screening, Diagnosis, & Treatment options
Digitization of Rare Diseases - Registries, Emerging Markets
DEI & Globalization for Orphan Drugs
Orphan Drug Clinical Trials
Regulatory pathways for Orphan Drugs
Live and in-person at Van Metre Hall, George Mason University
Registrations Details
Disclaimer: *For information only. IndoUSrare is not affiliated with and does not endorse any of these funding sources. We also do not provide any travel allowances.
RDDC Health Equity Conference Scholarship
Deadline: Aug 31, 2023 11:59 PM, EST
This scholarship supports conference participation for early-career medical and allied health professionals, and medical and allied health students seeking to expand their knowledge in the field of Rare Diseases and are committed to advancing equity, diversity, and inclusion in Rare.
NOT FOR PUBLIC DISPLAY - to use as a guide to set up registration at Backend | ||||||
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Type of Registration | Type of Registration | Academia/non-profit/PAGs* | FT Students | Patients, Individuals (get correct terminology)* | Speakers | *Member Discounts for Corporate & Patients Alliance |
Type of Registration | Industry | Professional Advocate, Non Profits, Academia, Government, Healthcare providers |
Students | Patients, Caregivers | Speakers | * Member Discounts for Corporate & Patients Alliance |
Registration - In-person | 750 | 250 | 50 | 50 | 0 | 50% |
Reg - Virtual | 250 | 100 | 25 | 25 | 0 | 50% |
IURARE Gala & Awards Ceremony (Single) | 550 | 550 | 550 | 550 | Donate | 0% |
IURARE Gala & Awards Ceremony (Couple) | 800 | 800 | 800 | 800 | Donate | |
Gala ticket (as add on with registration) | 350 | 350 | 350 | 350 | 0% | |
Amount in USD | ||||||
Please note Capacity for In Person as given below | ||||||
Cap - in-person (max number of registration) | 80 | 50 | 20 | 30 | 30 | |
Discount rules | ||||||
V early bird | 50% off | first 50 registrations from start promocode "FIRST50" | Only for registration not for Gala | Please suggest the End Date June 15th 2023 | ||
Early bird | 25% off | Till August 15th 2023- promocode "EARLYBIRD" | Only for registration not for Gala | Please suggest the Start Date August 15th 2023 | ||
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Only applicable if they are using the promocode . In case of any registrions without promocode , the actual registration charges will be levied | Only for registration not for Gala | To be used |
How do advocacy and engagement differ across the world? (views from patient advocates from the US, EU, and India)
TBD (US, India) Harsha Rajasimha, MS Ph.D.
What does DEI mean to us today - definitions and inadequacies, and the way ahead
Screening, diagnosis and treatments for rare disease patients – differences across geographies (physicians in the rare disease field)
TBD
Current status, and strategies to increase global representation
(experts in design and development of real-world data, registries, natural history studies)
TBD
- Keynotes from the greats
TBD
6:30 pm onwards
Recap of Day 1
Reena Kartha, Ph.D
Challenges with conducting rare disease clinical trials in areas other than the western world, emphasis on India
(views from Clin ops experienced panelists from companies in the US, EU, India)
TBD
Regulatory and policy differences in various geographies, and how we can develop a global framework to bring access to treatments everywhere
(panelists from the FDA, EU/EMA, DCGI, other regulators)
What are the pathways for rare diseases drugs in India – for approval, for reimbursement, etc
(Delegates from Indian Regulatory Agencies and Pharma companies)
Frank Sasinowski, JD, MPH
(Leaders from companies - experiences from launching rare disease drugs)
TBD
Volunteer Recognition Vote of Thanks
Narayanan Govindarajan, Treasurer & Board Director, IndoUSrare
3:30 pm to 4 pm
The Virtual Actuarial Conclave (VAC) is an annual flagship event hosted by the Institute of Actuaries of India. It is a platform which brings renowned global speakers and eminent dignitaries from across the globle together and provides unmatched learning and networking opportunities to the members of actuarial community. It is one of the most sought-after events amongst the students, who look forward to it every year to learn from the industry leaders and trendsetters and connect with the potential employers.
VAC encapsulates a series of large expert sessions that cover a wide variety of Actuarial topics at a macro level, while diving deep into the fundamentals and on-ground challenges with smaller groups. This lends a comprehensive angle to the event, making it relevant for one and all. With a new and emerging era of digitization, VAC is an effort to continue developing the profession and encouraging valuable discussions through its platform. By embracing the digital format, this annual event that offers a sense of belonging to the entire actuarial community, has now become more accessible and global in nature.
With a new and emerging era of digitization, VAC is an effort to continue developing the profession and encouraging valuable discussions through its platform. By embracing the digital format, this annual event that offers a sense of belonging to the entire actuarial community, has now become more accessible and global in nature.
ALUCAST 2021 Virtual Conference will focus on the above referred challenges faced by the Die Casting Industry and deliberate on methods to tackle these issues and revive the Die Casting Industry post pandemic and pave the path towards sustainable growth.
I have pleasure in inviting Professionals, Engineers and Academicians to present Technical Papers on the various topics identified for ALUCAST 2021 Virtual Conference.
The ALUCAST 2021 Virtual Exhibition is being concurrently organized, and shall provide the Die Casters, manufacturers and suppliers from the allied industries a platform to showcase their products and services to prospective clients and revive business opportunities.
The Event assures the best value, experience and visibility for the Sponsors, Exhibitors, Speakers, Delegates and the Visitors. I extend a Warm Invitation to all the Professionals, Engineers, Academicians and the Students of Engineering and Technology to participate in this 3-Days Virtual Conference and Exhibition.
The Advisory Committee – ALUCAST 2021 looks forward to the support of the entire Die Casting Fraternity, as in the past. I thank you for your continued support and patronage.
With best wishes
Welcoming the chief guest and Introduction to PCOS
Dr. Priya Bhave Chittawar
Remarks on Program & Introduction of Chairperson
Dr. Pratishtha Dalmia
Introduction to SIG PCOS
Dr. Leena Wadhwa
Newer Therapies in PCOS
Dr. Brig R.K. Sharma
Discussion by Chairperson
Dr. Mala Arora
Dr. Anju Verma
Dr. Hema Shobhane
Dr. Shashibala Bhonsle Sao
Dr. Preeti Gupta
Dr. Meera Bandil
Dr. Sonali Agrawal
Introduction of Second Speaker
Dr. Susmita Mukherjee
Ovulation Induction Protocols in different phenotypes of PCOS
Dr. Bharati Dhorepatil
Discussion by Chairperson & Audience
Vote of Thanks
Dr. Pratishtha Dalmia
Day 2 : 24th August 2022 Time: GMT + 5:30
Two Sides of the Same Coin: The Link Between Air Pollution and Climate Change
Welcome address and introduction
Session 1: Energy Fix - The Role of Low-Emission Technologies in Addressing Air Pollution & Climate Change (Panel Discussion)
Objective: Adopt clean fuel technology through sustainable approaches for a holistic reduction in emissions in developing countries
Discussion pointsSession 2: Solutions for Pollution (Student Poster Competition, Round 1)
Objective: Evaluate students' posters and shortlist five posters for the final round to be presented on Day 3 of the event
Session 3: Seeing Is Believing - Addressing the Time Lag of Climate Change Impact to Enable Policies That Work (Presentation)
Objective: Assess the effect of air pollution on regional climate, livelihood, survival, etc.
Discussion pointsSession 4: The Number Game - Putting a Number on Our Losses (Panel Discussion)
Objective: Explore the economic impact of air pollution on the society, environment, and occupational health
Discussion pointsSession 5: Introducing Sponsors
Introduction of technologies and research outputs by sponsors
Summary of the day and concluding remarks
Day 3 : 25th August 2022 Time: GMT + 5:30
Tracking Clean Air Policies: Where Are We in the War Against Pollution?
Welcome note and keynote address
Session 1: Policy Manoeuvres - Way forward for NCAP (Panel Discussion)
Objective: Understand ground-level challenges faced by NCAP, identify interventions required for achieving NCAP targets, and highlight the way forward
Discussion pointsSession 2: Solutions for Pollution (Student Poster Competition, Final Round)
Session 3: Better Data for Better Policies - Standardising Measurement Practices (Presentation)
Objective: Frame a uniform measurement protocol using hybrid sensors, satellite data, mobile monitoring, etc., for informed policy decisions
Discussion pointsSession 4: Policy Integration - Leveraging Co-benefits of Policies Addressing Air Pollution and Climate (Panel Discussion)
Objective: Discuss counter-intuitive policy decisions on climate and air pollution, identify the correlation between air pollution and climate change policies, and determine sustainable approaches
Discussion pointsSession 5: Introducing Sponsors
Introduction of technologies and research outputs by sponsors
Summary of the day and concluding remarks
Day 4 : 26th August 2022 Time: GMT + 5:30
Air Sensor International Conference - India Chapter
Opening panel: Discussion of the current situation and perspectives regarding small, affordable air quality sensors and deliberate the common future we want to establish a vision that brings all perspectives together
Session 1A: Data Modelling and Analytics
Session 1B: Choosing and Evaluating a Sensor
Session 2A: Data Assimilation, Sharing, and Visualisation
Session 2B: Network Design and Operations
Session 3: Performance Targets and Sensor Calibration
Session 4: Real-World Sensor Applications
Closing panel: How to create consensus and move forward with common standardisation goals to influence improved air quality.
**programmes are subject to change without notice.
International & National Speakers
Speaker Sessions & Panel Discussions
Stellar Award Ceremonies
Industry Partners